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Patient Advocate Foundation
help@patientadvocate.org
Phone: (800) 532-5274
Fax: (757) 873-8999
Home > Resources > PAF Publications > PAF Guides & Major Publications > A Guide to Clinical Trials > Patient Resources

Patient Resources

All website descriptions are copied from the respective websites themselves.

American Cancer Society (ACS)
www.cancer.org
#800-ACS-2345
Road to Recovery Program. Provides transportation for cancer patients to and from treatment for people who have cancer who do not have a ride or are unable to drive themsleves. Volunteer drivers donate their time and use of their cars so patients can receive life-saving treatments they need.

Cancer Care
www.cancercare.org
#800=813-4673
Cancer Care provides limited grants for certain expenses related to treatment.
Candlelighters Childhood Cancer Foundation www.candlelighters.org, #800 366
2223. Provides advocacy, bereavement, counseling, financial assistance,
insurance information, as well as information and referral.

Foundation for Children With Cancer (FCC)
www.childrenwithcancer.org
Financial Assistance This program's goal is to assist families with the financial burden that often accompanies an illness. FCC is unique in that it eliminates the "red tape" which often hinders families who need assistance. FCC networks with social workers, doctors, hospitals and clinics across the country to discover legitimate, unmet needs. In addition to dealing with the emotional trauma of having a child diagnosed with cancer, families of pediatric cancer patients are faced with high treatment bills, which can reach into the hundreds of thousands of dollars. FCC's simple two-page application form, coupled with direct payment to vendors or mortgage institutions, eliminates additional stress for families, allowing them to focus on their child.

Joe's House
www.joeshouse.org
Provides a list of reduced or free lodging in the area of the treatment center.

Make a Wish Foundation
www.wish.org
#800 722 9474
Grants wishes of children (up to 18) who have life-threatening illnesses.
National Brain Tumor Society (NBTS) www.braintumor.org/PatientServices
Overview/#800-934-2873. Families are often faced with not only the overwhelming
costs of treatment, but ongoing loss of income and increased expenses. The
NBTS financial assistance program provides grants of up to $500 to assist with
treatment related expenses and non-medical expenses including child care, home
care, home adaptations, and transportation.

National Children's Leukemia Foundation
www.leukemiafoundation.org
#800 448 3467
A national non-profit organization whose sole purpose is to provide a wide
variety of services, support and referrals to leukemia patients and their families. Primary goal is to ensure access to the state of the art treatment regardless of the ability to pay.

The Aubrey Rose Foundation
www.aubreyrose.org
Provides financial assistance. Grants are awarded based on need. If a family has outstanding medical bills that insurance will not cover, this Foundation can possibly help out a family in need until annual funds have been exhausted.

The National Children's Cancer Society
www.children-cancer.com
#1 800 5 FAMILY (#1 800 532 6459)
Provides financial assistance to any child diagnosed with cancer on or before his/her 18th birthday. Assistance for ancillary costs may include transportation, childcare, household expenses, meals, lodging and insurance premiums.

The Tomorrow Fund
www.tomorrowfund.org
#401-444-8811
In most cases when a child has cancer, one parent must quit their job in order to care for their ill child. Medical expenses not covered by insurance can be enormous, and ancillary costs, such as travel, child care for siblings, hospital meals and parking, and accommodations during out-of-state treatment are high. When coupled with reduced income, these expenses can be devastating. The Tomorrow Fund helps ease financial burdens through daily monetary stipends for meals, hospital parking passes, home expenses, medication and insurance co-pays.

Website Resources for Patients:
http://www.cancer.org/docroot/NWS/content/NWS_1_1x_Clinical_Trials_Optimal_
Option_For_ Childhood_Cancer.asp

http://www.cancer.org/docroot/ETO/content/ETO_1_4X_Monoclonal_Antibody_
Therapy_Passi ve_Immunotherapy.asp?sitearea=ETO

http://www.cancer.gov/CLINICALTRIALS

http://www.nimh.nih.gov/health/trials/index.shtml

http://www.lazarex.org/lookingforhelp.html

http://www.cancertrialshelp.org/trialcheck/default.aspx



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