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Home > This Just In > Advocacy partners publish guide to help patients discuss cost with their doctors.

Advocacy partners publish guide to help patients discuss cost with their doctors.

PAF advocacy partner Cancer Support Community launches toolkit to help patients navigate cancer cost
Frankly Speaking About Cancer®: Coping with the Cost of Cancer Fourth Edition Released

Washington, DC (2013) - A recent study conducted by the Cancer Support Community (CSC) revealed a majority (72.8%) of patients experienced some degree of emotional distress from managing the cost associated with their cancer care. Additionally, 64.8% reported having no discussion with their health care team about the financial aspects of care. To help meet the needs of the growing population of people impacted by the financial burden of cancer care, the Cancer Support Community released the fourth edition of its highly acclaimed Frankly Speaking About Cancer®: Coping with the Cost of Care. Frankly Speaking About Cancer: Coping with the Cost of Care is presented in partnership with the Association of Oncology Social Work, Cancer and Careers, Cancer Legal Resource Center, LIVESTRONG, National Coalition for Cancer Survivorship, Patient Access Network, Patient Advocate Foundation and Survivorship A – Z.

“People with cancer today are asked to make more complex decisions about diagnostic and treatment options as well as health insurance coverage. Ongoing changes to the health care system mean patients and their families need information that will allow them to ask the right questions and access the tools needed to receive appropriate, effective care. ,” said Kim Thiboldeaux, President & CEO of the Cancer Support Community.

Frankly Speaking About Cancer: Coping with the Cost of Care includes a free patient education booklet, workshops and online content. Highlights include:

  • The latest information on the Affordable Care Act, including federal and state implementation
  • Updates on health insurance options and health care consumer protections
  • New information on ways to help pay for treatment and living expenses
  • Updated description of Medicare/Medicare Part D
  • Updates to employment protections and disability insurance benefits
  • Overview of patient assistance programs
  • Up-To-Date Listing of Resources
  • Updated information about federal and state requirements for insurance coverage of clinical trials, oral chemotherapies, prescriptions drugs, and fertility preservation options
For more information about Frankly Speaking About Cancer: Coping with the Cost of Care including ways in which you can obtain free materials or bring a workshop to your area, please visit

About the Cancer Support Community

The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. In 2009, The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations, and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women, and children with any type or stage of cancer, and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes, and social activities for the entire family. In 2011, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care. So that no one faces cancer alone.