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Appeals Process Guide

Managed Care Answer Guide

First My Illness...

Disability Process Guide

A Healthier African Am Community

Greater Understandings

American Indian - Alaska Native

A Guide to Clinical Trials

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Patient Advocate Foundation
help@patientadvocate.org
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Phone: (800) 532-5274
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Home > Resources > PAF Publications



PAF has produced nine major publications, several informational brochures, and several special sections devoted to certain health related topics to assist in this goal:

PAF Corporate Brochure - download as printed    

Managed Care Answer Guide
Managed Care Answer Guide     View as printed

Your Guide to the Appeals Process     View as printed

Your Guide to the Disability Process   

First My Illness, Now Job Discrimination: Steps to Resolution
View as printed

Promoting a Healthier African American Community
View as printed

Promoting a Healthier American Indian & Alaska Native Community

Guide to Health Savings Accounts    View as printed

Too Young to be Ill... A Practical Survival Guide for Caregivers of Children and Young Adults    View as printed

Lighting the Way: A Practical Guide to Clinical Trials    View as printed

The National Financial Resources Guidebook for Patients
A State by State Directory of information for patients seeking financial relief for a broad range of needs including housing, utilities, food, transportation to medical treatment, and children's resources.


Compassionate Social Security Disability Allowance for Cancer Patients: Providing Access to Financial Security and Necessary Healthcare Coverage is a publication written by PAF case managers that outlines recommendations to standardize and improve access for oncology patients to the Social Security Disability system.



PAF has also contributed to the writing of a book that will be used in classrooms nationwide:
Patient Advocacy for Health Care Quality: Strategies for Achieving Patient-Centered Care
Jo Anne L. Earp, ScD, UNC School of Public Health, Elizabeth A. French, MA, UNC School of Public Health, Melissa B. Gilkey, MPH, Johns Hopkins Bloomberg School of Public Health
Jones and Bartlett Publishers

To learn more about this publication, please view Jones and Bartlett Publishers website.




This series of pamphlets has been written to provide answers to some of the questions that are answered most frequently by our case managers.

Greater Understanding
Social Security Disability vs. Supplemental Security Income and Subsequent Entitlements
This brochure helps explain the differences between Social Security Disability Insurance (SSDI) and Supplemental Security Income.
View as printed (in pdf format)













Usual, Customary & Reasonable Charges Defined
Usual, Customary and Reasonable Charges (UCR) are a predetermined set of fees made by a managed care plan for a specific health care product of service in the locale where the plan operates.
View as printed (in pdf format)

Financial Assistance & Debt Crisis Intervention
This pamphlet provides strategies you can use to resolve your debt resulting from your illness.
View as printed (in pdf format)

Greater Understanding
Understanding Your Explanation of Benefits
After you have visited a doctor, clinic, or hospital, an Explanation of Benefits from the insurance administrator tells you and your provider what portion of the provider's charges are eligible for benefits under your insurance plan.
View as printed (in pdf format)













Greater Understanding
Discovering Your Role as a Volunteer
By becoming a member of PAF's Advocates Alliance for Action, you will discover ways in which you can make a remarkable difference in the lives of people in your community and in America.
View as printed (in pdf format)













ERISA: What Is It and How Does It Affect You
A primer on the Employee Retirement Income Security Act of 1974 (ERISA) and how it relates to group health and disability plans such as Long Term and Short Term Disability.
View as printed (in pdf format)

Greater Understanding
Health Insurance for Young Adults: Why you need it and how to keep it.
A primer on the Health Insurance Portability and Accountability Act (HIPAA) and Consolidated Omnibus Budget Reconciliation Act (COBRA) and how these relate to young adults.
View as printed (in pdf format)


Greater Understanding
Medicare Modernization Act of 2003's Prescription Drug Coverage through Part DOn January 1, 2006 the Centers for Medicare & Medicaid Services (CMS), for the first time ever extended coverage for prescription drugs to Medicare beneficiaries. This publication is designed to answer some common questions regarding the program and to assist beneficiaries with understanding how the program works for them. View as printed (in pdf format)


Help! I'm Underinsured...
A primer written in response to the many concerns of patients, even fully insured, regarding out of pocket expenses, co-payments, deductibles, co-insurance, etc.

Greater Understanding
Help! I'm Uninsured...
A primer to assist those patients who are medically uninsured and experiencing trouble with accessing proper healthcare.
View as printed (in pdf format)


Greater Understanding
Second Opinions: Know Your Rights and Options
Making decisions about healthcare is one of the most important in a person’s life. Many people are told that they have cancer or another life threatening illness and feel that they must make a decision and begin treatment as soon as possible. While this may be true in some instances, taking the time to learn about your disease, getting a second opinion or perhaps even a third opinion and weighing your options is a very reasonable approach. Proactive decision making will give you a greater degree of control over your treatment. Decisions regarding your health should be made after you have been thoroughly informed about your diagnosis, prognosis and available treatment options.
View as printed (in pdf format)





Order Our Publications
Print this form and fill out the information completely. Fax it to Patient Advocate Foundation. Fax number is on the form. Upon receiving this form, our Mail Staff will contact you to confirm your information.    



PAF Guides

The Uninsured: Voices of Despair
This report, prepared by the professional case managers at PAF, contains a summary of thousands of patients who contacted PAF. It contains recommended remedies to address the current issues confronting the 44 million uninsured Americans in the country today.

PAF Special Online Sections



PAF publications are available online and in hardcopy.