Our History
Our Founder, Nancy Davenport-Ennis, shares the story behind Patient Advocate Foundation and National Patient Advocate Foundation—and why, 30 years later, our work is more important than ever.

"...As we walked out of her funeral, I said to my husband, "It is me." And he said, "It is you, what?" And I said, "It is me who has to go and start some organization who can solve some of the problems that these patients are facing. It was New Year's Eve. We went home that night, and I stayed up until dawn writing two business plans. And those two business plans were for one organization that became Patient Advocate Foundation that would solve the immediate problems of the patients and their families at the time of crisis and need. The second business plan was much broader. It was to take the voices of every single patient to Washington, DC, and to all 50 states in this country to change laws, to change regulations, and to make this a better world for all of us who had chronic, debilitating, and life-threatening conditions..."
~ Nancy Davenport-Ennis
Watch the Full Story here.
Our History
Nancy Davenport-Ennis, Founder of Patient Advocate Foundation became involved in legislative reform on behalf of cancer patients while a dear friend of hers, Cheryl Grimmel, was battling both breast cancer and her insurance company. As Cheryl valiantly fought her fight, Nancy volunteered with the Virginia Task Force for Insurance Reform - sharing the previously underrepresented patient’s perspective and fought to reform insurance coverage for cancer patients. Victory for the task force came with the passage of Virginia House Bill 240 sponsored by Delegate Mary T. Christian in 1994.
Cheryl lost her battle with breast cancer in December 1994, and on the night of her funeral, as the rest of the world was ringing in the New Year, Nancy and Jack Ennis wrote business plans for two complementary nonprofit organizations geared towards solving the issues faced by patients like their friend Cheryl. National Patient Advocate Foundation (NPAF) and Patient Advocate Foundation were born in concept that night and became a reality shortly thereafter.
Cheryl's strength in the face of her battle serves as an inspiration to those at Patient Advocate Foundation as they work and interact with patients in need.

In the summer of 2013, after founding and serving as CEO for both PAF and NPAF for more than 17 years, Nancy Davenport-Ennis stepped away from the day-to-day management of both organizations, remaining as Chair Emerita. In July 2013, Alan Balch Ph.D. was named Chief Executive Officer and is responsible for the operation and leadership of both organizations.
Today, both NPAF and PAF are national leaders on the forefront of important issues within patient-focused healthcare and serve as the voice of patients in need. At the helm are an Executive Board, Scientific Advisory Committee, and Honorary Board - all made possible by support from our Partners in Progress and generous community donors.




