Patient Action Council

Patient Action Council is an invitation-only membership-based group of pharmaceutical and healthcare advocacy executives who serve as a catalyst for the launch of a product each year that provides great benefit to patients.

Established in 2008, the Patient Action Council forum allows like-minded pharmaceutical and biotechnology industry patient advocacy members to collaborate with a goal to provide a least one specific deliverable to improve national healthcare access jointly with Patient Advocate Foundation. The Council convenes and works alongside PAF leaders to define the annual project and identify the process to approach the project and then together, the outcomes are defined and developed through research, discovery, and collaborative development.

Our Patient Action Council, a unified industry partnership created in 2008, has been an important agent in delivering quality assistance to healthcare consumers in their time of need, and has complemented PAF’s core mission services with numerous educational tools. Through this Council, PAF has worked collaboratively with members of the pharmaceutical and biotechnology industries and together in our service to patients, we are proud to have improved the lives of millions of Americans with quality materials.

ACTIVE PROJECTS
Each year, the Patient Action Council leaders assemble to direct the creation of an educational or service-based project that addresses a major healthcare issue important to both industry and the populations served by PAF. The specific deliverables initiated and supported by the PAC are ultimately focused on assisting vulnerable patients through proactive approaches or actionable guidance that help alleviate access barriers and streamline processes that allow for better heath outcomes. As PAC approaches its 10th year, many of its annual projects remain relevant to patients as a source of valuable information.
NATIONAL UNDERINSURED RESOURCE DIRECTORY & ONLINE SEARCH TOOL

Updated each year, the National Underinsured Resource Directory is an online search tool that helps users to identify programs that help insured patients in their situation.   

Generating a list of assistive programs is as quick as 1 ‐ 2 ‐ 3 ‐ 4 by answering only four simple questions. By offering over 35 assistance categories to choose from, patients and their advocates can quickly narrow resources to those that offer the exact help they need ‐‐ including options like screening services, insurance policy options, financial assistance for housing, utilities and transportation, clinical trial or medication assistance.   Users may search as often as they need, as well as email themselves a copy of the results for future reference. 

Today, this resource has been combined with the National Uninsured Resource Directory and the National Financial Resource Directory and can be found here. 

Additionally, this project included a print booklet that outlines basic information, recommendations and helpful tips for patients when speaking with medical providers and seeking to narrow the vast and overwhelming number of potential local, state and national coverage assistance resources. The directory is a compliment to National Underinsured Resource Directory electronic search resource. 

NATIONAL UNINSURED RESOURCE DIRECTORY & ONLINE SEARCH TOOL

Updated each year, the National Uninsured Resource Directory is an online search tool that helps users to identify programs that help uninsured patients in their situation. 

To specifically address the needs of the uninsured populations, the National Uninsured Resource Directory allows patients without active insurance the ability to quickly identify the community, national and charity programs that can assist in their healthcare needs. Today, this resource has been combined with the National Uninsured Resource Directory and the National Financial Resource Directory and can be found here. 

Additionally, this project included a print booklet that outlines basic information, recommendations and helpful tips for patients when speaking with medical providers and seeking to narrow the vast and overwhelming number of potential local, state and national coverage assistance resources. The directory is a compliment to National Uninsured Resource Directory electronic search resource. 

The National Underinsured Resource Directory publication is a self-empowerment tool for patients across the U.S. who may delay or stop treatment due to cost. The publication is a comprehensive educational resource intended to assist uninsured individuals and their families who are struggling to pay the expenses of care, need to locate valuable resources, and to connect with eligible coverage options and methods for better reimbursement.

HEALTH REFORM & YOU: A USERS GUIDE A HEALTH INSURANCE MARKETPLACES

During the summer of 2013, news of the open enrollment period for the health insurance marketplaces began to reach consumers across America as organizations and media outlets worked to inform the public. With increased awareness, the PAC supported marketplace tools provided critically needed information and clarification for those planning to research their insurance options. With a timely publication early in the summer, the Health Reform and You: A User’s Guide to Health Insurance Marketplaces became an important resource for providers, patient advocacy groups, non-profits and patients.

Interest in the guide continued to grow following the October 1 opening of the federal and state-based marketplaces, and it remains a resource for those who will be completing enrollment today. In addition, as one of the only resources available to Spanish-speaking patients on this topic, the guide filled a crucial information void for that audience.

MY RESOURCE SEARCH MOBILE APP

My Resource Search

My Resource Search is a free, easy to use, smart finder tool for on-the-go healthcare, financial and insurance help. This mobile phone app allows both insured and uninsured patients the ability to quickly identify the community, national and charity programs that can assist in their healthcare needs. It is perfect for patients currently experiencing a health crisis, or providers who want to guide their patients to programs that may be able to reduce their barriers to care, this app can help!

Available for all Android and Apple phones and tablets.

LEARNING THE LANGUAGE OF HEALTH INSURANCE

Words That Matter

A Patient’s Healthcare Glossary

Illustrated by national consumer survey data, Patient Advocate Foundation has documented that for some of the most commonly used terms surrounding healthcare and health insurance, as little as 59% of patients felt that they were confident in the meaning of the words.

Critical vocabulary used during enrollment and the usage of health insurance, including deductible, co-payment, network, covered services and excluded services are too frequently confused by patients. In addition, our survey data has shown a distinct correlation between the understanding of these words and the ease of enrollment process and also a patient’s ultimate satisfaction of the plan they selected.

This “Words that Matter” glossary and “Chatter that Matters” materials are part of a branded project supported by Patient Advocate Foundation and the Patient Action Council. Survey data referenced above was analyzed within with the “Health Insurance Marketplace Experience Survey” project which collected responses from a random sample of healthcare consumers from November 2014 to January 2015.
MAKING SENSE OF YOUR DRUG FORMULARY

Emphasis on Improving Consumer Understanding of the Drug Formulary

PAF crafted a wide array of materials that together serve as a toolkit library for patients, caregivers and advocates who want to be better prepared to engage with their formulary.

While the 2016-2017 project sought to increase awareness of formularies and stress the importance of accessing and using the formulary, most of the materials aimed to empower patients with tools that illuminate the true cost impact to their wallets.

With concrete and detailed accounting of the amount they can expect when picking up a medication at the pharmacy, patients are better off and are likely happier with their plan.

PAF would like to thank the 2017-2018 Patient Action Council members for providing the opportunity to pursue these educational projects and for their support and guidance throughout the entire process.  It is a direct result of annual Patient Action Council member support that PAF is able to ensure ongoing maintenance and/or enhancement of previous deliverables.

Amgen
Bristol-Myers Squibb
Novartis
Pfizer

A TOUR OF PAC RESOURCES

Coverage Access Guide is a free, easy to use, article-based educational guide for all current and future patients, created by the nation’s leading patient advocacy organization. Topics are geared to help both novice and experienced patients prevent common insurance obstacles and enhance their overall healthcare experience. Advice and tips covered…
EMPHASIS ON IMPROVING CONSUMER UNDERSTANDING OF THE LANGUAGE OF HEALTHCARE Based on the insight gained during the marketplace experience survey, this project sought to emphasize and boldly bring vocabulary to the attention of the average healthcare consumer. Our awareness of the positive correlation between consumers’ knowledge surrounding the terminology used…
EMPHASIS ON IMPROVING CONSUMER UNDERSTANDING OF THE LANGUAGE OF HEALTHCARE Educational studies point out that attention spans are decreasing over time so it is important that the message be able to be processed with minimal effort in order to resonate with the audience. This is one of the reason’s the…
My Resource Search is a free, easy to use, smart finder tool for on-the-go healthcare, financial and insurance help by the nation’s leading patient organization – Patient Advocate Foundation. Harnessing the power of the National Uninsured and Underinsured Resource Directories, My Resource Search allows both insured and uninsured patients the ability to quickly…
Printed publications and guides continue to serve as much needed reference material for patients. Our materials are provided to patients directly, and also shared with providers and advocacy groups who work directly with patients to help empower their patients with knowledge. Materials created as a result of the PAC collaboration…

Patient Action Council Members