Patient Action Council

Patient Action Council is an invitation-only membership-based group of pharmaceutical and healthcare advocacy executives who serve as a catalyst for the launch of a product each year that provides great benefit to patients.

Established in 2008, the Patient Action Council forum allows like-minded pharmaceutical and biotechnology industry patient advocacy members to collaborate with a goal to provide a least one specific deliverable to improve national healthcare access jointly with Patient Advocate Foundation. The Council convenes and works alongside PAF leaders to define the annual project and identify the process to approach the project and then together, the outcomes are defined and developed through research, discovery, and collaborative development.

Our Patient Action Council, a unified industry partnership created in 2008, has been an important agent in delivering quality assistance to healthcare consumers in their time of need, and has complemented PAF’s core mission services with numerous educational tools. Through this Council, PAF has worked collaboratively with members of the pharmaceutical and biotechnology industries and together in our service to patients, we are proud to have improved the lives of millions of Americans with quality materials.

ACTIVE PROJECTS
Each year, the Patient Action Council leaders assemble to direct the creation of an educational or service-based project that addresses a major healthcare issue important to both industry and the populations served by PAF. The specific deliverables initiated and supported by the PAC are ultimately focused on assisting vulnerable patients through proactive approaches or actionable guidance that help alleviate access barriers and streamline processes that allow for better heath outcomes. As PAC approaches its 10th year, many of its annual projects remain relevant to patients as a source of valuable information.
NATIONAL UNDERINSURED RESOURCE DIRECTORY & ONLINE SEARCH TOOL

Updated each year, ang Pambansang Underinsured Resource Directory is an online search tool that helps users to identify programs that help insured patients in their situation.

Bumubuo ng isang listahan ng mga pantulong na mga programa ay bilang mabilis na bilang 1 2 3 4 sa pamamagitan ng pagsagot lamang ng apat na simpleng mga katanungan. Sa pamamagitan ng nag-aalok ng higit sa 35 kategorya assistance upang pumili mula sa, patients and their advocates can quickly narrow resources to those that offer the exact help they need ‐‐ including options like screening services, pagpipilian insurance policy, pinansiyal na tulong para sa pabahay, mga utility at transportasyon, klinikal na pagsubok o tulong gamot. Users may search as often as they need, as well as email themselves a copy of the results for future reference.

ngayon, this resource has been combined with the National Uninsured Resource Directory and the National Financial Resource Directory and can be found here.

Bukod pa rito, this project included a print booklet that outlines basic information, recommendations and helpful tips for patients when speaking with medical providers and seeking to narrow the vast and overwhelming number of potential local, state and national coverage assistance resources. The directory is a compliment to National Underinsured Resource Directory electronic search resource.

NATIONAL UNINSURED RESOURCE DIRECTORY & ONLINE SEARCH TOOL

Updated each year, ang Pambansang Uninsured Resource Directory is an online search tool that helps users to identify programs that help uninsured patients in their situation.

To specifically address the needs of the uninsured populations, ang Pambansang Uninsured Resource Directory allows patients without active insurance the ability to quickly identify the community, national and charity programs that can assist in their healthcare needs. ngayon, this resource has been combined with the National Uninsured Resource Directory and the National Financial Resource Directory and can be found here.

Bukod pa rito, this project included a print booklet that outlines basic information, recommendations and helpful tips for patients when speaking with medical providers and seeking to narrow the vast and overwhelming number of potential local, state and national coverage assistance resources. The directory is a compliment to National Uninsured Resource Directory electronic search resource.

The National Underinsured Resource Directory publication is a self-empowerment tool for patients across the U.S. who may delay or stop treatment due to cost. The publication is a comprehensive educational resource intended to assist uninsured individuals and their families who are struggling to pay the expenses of care, need to locate valuable resources, and to connect with eligible coverage options and methods for better reimbursement.

HEALTH REFORM & YOU: A USERS GUIDE A HEALTH INSURANCE MARKETPLACES

During the summer of 2013, news of the open enrollment period for the health insurance marketplaces began to reach consumers across America as organizations and media outlets worked to inform the public. With increased awareness, the PAC supported marketplace tools provided critically needed information and clarification for those planning to research their insurance options. With a timely publication early in the summer, ang Health Reform and You: A User’s Guide to Health Insurance Marketplaces became an important resource for providers, patient advocacy groups, non-profits and patients.

Interest in the guide continued to grow following the October 1 opening of the federal and state-based marketplaces, and it remains a resource for those who will be completing enrollment today. At saka, as one of the only resources available to Spanish-speaking patients on this topic, the guide filled a crucial information void for that audience.

MY RESOURCE SEARCH MOBILE APP

Aking Resource Paghahanap

Aking Resource Paghahanap is a free, madaling gamitin, matalino na kasangkapan finder para sa on-the-go healthcare, financial and insurance help. This mobile phone app allows both insured and uninsured patients the ability to quickly identify the community, national and charity programs that can assist in their healthcare needs. It is perfect for patients currently experiencing a health crisis, o mga provider na nais upang gabayan ang kanilang mga pasyente sa mga programa na maaaring mabawasan ang kanilang mga hadlang sa pag-aalaga, this app can help!

Available for all Android and Apple phones and tablets.

LEARNING THE LANGUAGE OF HEALTH INSURANCE

Words That Matter

Healthcare Glossary Isang Pasyente

Illustrated by national consumer survey data, Patient Advocate Foundation ay dokumentado na para sa ilan sa mga pinaka-karaniwang ginagamit na mga tuntunin nakapaligid healthcare at health insurance, kasing liit ng 59% ng mga pasyente nadama na sila ay may tiwala sa kahulugan ng mga salitang.

Kritikal na bokabularyo na ginagamit sa panahon ng pagpapatala at ang paggamit ng health insurance, kabilang ang deductible, co-payment, network, sakop na serbisyo at ibinukod mga serbisyo ay masyadong madalas na nalilito sa pamamagitan ng mga pasyente. At saka, ang aming survey data ay ipinapakita ng isang natatanging ugnayan sa pagitan ng pang-unawa sa mga salitang ito at ang kadalian sa proseso ng pagpapatala at din tunay na kasiyahan sa isang pasyente ng plano pinili nila.

This “Words that Matter” glossary and “Chatter that Matters” materials are part of a branded project supported by Patient Advocate Foundation and the Patient Action Council. Survey data isinangguni sa itaas ay pinag-aralan ng loob sa mga proyektong "Health Insurance Marketplace Karanasan Survey" na nakolekta tugon mula sa isang random sample ng mga mamimili ng pangangalaga sa kalusugan mula Nobyembre 2014 hanggang Enero 2015.
MAKING SENSE OF YOUR DRUG FORMULARY

Emphasis on Improving Consumer Understanding of the Drug Formulary

PAF crafted a wide array of materials that together serve as a toolkit library for patients, caregivers and advocates who want to be better prepared to engage with their formulary.

While the 2016-2017 project sought to increase awareness of formularies and stress the importance of accessing and using the formulary, most of the materials aimed to empower patients with tools that illuminate the true cost impact to their wallets.

With concrete and detailed accounting of the amount they can expect when picking up a medication at the pharmacy, patients are better off and are likely happier with their plan.

PAF would like to thank the 2017-2018 Patient Action Council members for providing the opportunity to pursue these educational projects and for their support and guidance throughout the entire process. It is a direct result of annual Patient Action Council member support that PAF is able to ensure ongoing maintenance and/or enhancement of previous deliverables.

Amgen
Bristol-Myers Squibb
Novartis
Pfizer

A TOUR OF PAC RESOURCES

EMPHASIS ON IMPROVING CONSUMER UNDERSTANDING OF THE LANGUAGE OF HEALTHCARE Based on the insight gained during the marketplace experience survey, proyektong ito na hinahangad upang bigyang-diin at buong tapang na magdala ng bokabularyo sa atensyon ng ang average consumer healthcare. Our awareness of the positive correlation between consumers’ knowledge surrounding the terminology used
Coverage Access Guide ay isang libreng, madaling gamitin, article na nakabatay sa gabay pang-edukasyon para sa lahat ng kasalukuyan at hinaharap na mga pasyente, nilikha sa pamamagitan ng mga nangungunang mga organisasyon pasyente pagtataguyod sa bansa. Mga paksa ay nakatuon upang makatulong sa parehong mga baguhan at nakaranas ng mga pasyente maiwasan obstacles karaniwang insurance at pagbutihin ang kanilang kabuuang karanasan ng pangangalaga sa kalusugan. Advice and tips covered
Naka-print publication at mga gabay ay patuloy na naglilingkod bilang magkano ang kailangan na reference na materyal para sa mga pasyente. Ang aming mga materyales ay ibinigay sa mga pasyente direkta, at din na ibinahagi sa mga provider at mga grupo adbokasiya na nagtatrabaho nang direkta sa mga pasyente upang makatulong na magbigay ng kapangyarihan sa kanilang mga pasyente na may kaalaman. Materials created as a result of the PAC collaboration
Aking Resource Search ay isang libreng, madaling gamitin, matalino na kasangkapan finder para sa on-the-go healthcare, pananalapi at insurance tulong sa pamamagitan ng nangungunang mga organisasyon pasyente sa bansa - Patient Advocate Foundation. Harnessing ang kapangyarihan ng National Walang Seguro at Underinsured Resource Directories, My Resource Search allows both insured and uninsured patients the ability to quickly
EMPHASIS ON IMPROVING CONSUMER UNDERSTANDING OF THE LANGUAGE OF HEALTHCARE Educational studies point out that attention spans are decreasing over time so it is important that the message be able to be processed with minimal effort in order to resonate with the audience. This is one of the reason’s the

Patient Action Council Members